Life with chronic pain is difficult no matter how old you are. But teens living with chronic pain face some unique challenges. Recent studies reveal just how widespread chronic pain in teens is. Factors like stigma and financial limitations sometimes make treating that pain feel impossible.
If you’re a teen (or a young adult) with chronic pain, the more you understand about what you’re facing, the more informed your journey will be.
How chronic pain complicates adolescence
Chronic pain is surprisingly prevalent in children and teens. In fact, it affects about 25% of children and adolescents. Research on chronic pain in teens reveals that issues such as headaches, abdominal pain, musculoskeletal pain and back pain are among the most widespread issues.
In fact, musculoskeletal pain was reported in as much as 40% of the population. Up to 83% of study participants reported experiencing headaches. Young girls experienced chronic pain more often than boys, and chronic pain was found to be more prevalent in teens who came from a lower socioeconomic status.
Pain can have a significant negative effect on a teen’s life. The emotional toll of living with chronic pain can affect both teens and their families. Diagnosing and treating chronic pain can also be financially draining, adding more stress for the entire family. Teens may also have a hard time coping with the stigma surrounding chronic pain. They may have mental health issues that make pursuing a diagnosis and treatment more challenging.
Managing complex regional pain syndrome
Teens can be affected by a number of chronic pain conditions, but one particular condition can be challenging to both diagnose and treat. Complex regional pain syndrome (CRPS) leads to amplified pain. Because doctors are still working to understand the condition, patients may be told that the issue is just in their heads.
When teens deal with stress and experience an injury or illness, it often results in a change in their physical activity level. This can begin a cycle of amplified pain where the brain essentially learns to be too afraid of pain. Doctors have found that treating CRPS involves retraining the brain to fear pain less by getting the teens active.
CRPS often affects teens and children who are overscheduled and under a significant amount of stress. These teens also tend to be overachievers.
Chronic pain’s link to psychiatric problems
Treating chronic pain in adolescents and young adults is a complicated issue. It’s important for young people, their families and their doctors to understand the link between chronic pain and psychiatric problems.
Researchers in Norway found that 7 out of 10 adolescents who have psychiatric problems also experience chronic pain. Pain was found to be more common in depressed teens, and teenage girls were found to be more likely to experience chronic pain than teenage boys.
Because teens who have conditions like anxiety and depression had the highest rates of pain, it’s important to treat chronic pain and psychological issues simultaneously. Treating these issues early on in life can ensure that these problems don’t extend on into adulthood.
How to support teens living with chronic pain
If you’re a parent or loved one of a teen living with chronic pain, you can help support your teen with the following steps:
- Prioritize self-care. This will help you be better able to help your teen with their own pain.
- Validate your teen’s pain. Listen to your teen and make sure your whole family recognizes that their pain is real.
- Advocate for your teen. Bring your teen to pain clinics and doctors who can diagnose the pain and create a treatment plan. Speak to advocates in their high school, too.
- Develop coping strategies. Work with a doctor to come up with a variety of strategies so that your teen has different options to try.
- Ask how you can support your teen. Everyone’s experience with pediatric pain is different. Don’t be afraid to ask your teen about the types of support that they need from you.
- Focus on rehabilitation. Maintain hope that the pain will improve. Work with doctors to set goals for your teen and to keep her engaged in her typical life as much as possible.
- Keep life as normal as possible. Try to give your teen typical life experiences and encourage her to be independent.
- Limit the focus on your teen’s chronic pain. It can be easy to dwell on your teen’s pain, but limit the amount of energy and focus you give to it. For instance, set aside 10 minutes per day to talk about the pain. Then change the conversation to other things.
- Build a support network. Your teen will need help through this journey, so establish a network of resources including family, friends, counselors, doctors, support groups, and more.
If you are a teen or young adult who is living with chronic pain, know that advancements are underway to provide you with even more pain relief options. It may be difficult to find an initial diagnosis and find treatments that work for you. There is no one size fits all treatment, but doctors and researchers are learning and doing more for effective, individualized treatments every day.
If you are a loved one of a teen or young adult who is living with chronic pain, remind her that the right doctor is out there and you will keep helping her search until you find the treatment that works for her. Continue to advocate for her with doctors and with loved ones.
To be clear, CRPS (Complex Regional Pain Syndrome) is not limited to adolescents. I contracted this horrible disease at age 60, from a surgery gone wrong. I would like to see the specific reference to the comment, “CRPS often affects teens and children who are overscheduled and under a significant amount of stress. These teens also tend to be overachievers.” As a Certified Health and Wellness Coach specializing in chronic pain management, CRPS does not discriminate who it attacks whether “overscheduled or under a significant amount of stress,” sex, age or race. What we do know is that chronic pain in general is more frequent in those individuals who have experience undue stress and trauma in their formative developing years, and those in lower income and socioeconomic standing. While the specific triggering mechanisms for either Type-1 and Type-2 are not well understood, we do know that physical trauma, such as a surgery, sprained ankle, and even needle sticks (rarely), can trigger an onslaught of the disease. A more frequent condition youth experience is migraine. Again, the causes are not well understood, but there are many therapeutic options available, and in most cases, pain management includes a combination of therapies (as does CRPS). Regards, David Hall, CHWC