The Pain that Lingers: How to Manage Phantom Limb Pain

Phantom limb pain has long been dismissed by many in the healthcare field. If you have phantom limb pain, read on for ways to manage it.

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Manage Phantom Limb Pain

The appendage may be gone, but the pain lives on. Phantom limb pain refers to painful and lasting sensations that radiate from a limb, extremity or other body part that is no longer connected to the body. In this guide, we’ll look at what to expect and provide practical tips on how to manage phantom limb pain.

Phantom limb pain 101 

The suffering caused by phantom limb pain isn’t uncommon. Between 60-80% of all amputees experience some kind of phantom limb sensation. Many also experience residual limb pain.

Though the exact cause of this condition is unknown, the pain is thought to be related to pain signals getting crossed as they travel from the brain to the spinal cord. Nerves that originally sent impulses from the limb to the brain continue to send information until the brain rewires itself and adjusts to the changes.

Manage Phantom Limb Pain doctor wrapping an amputated limb with phantom limb pain

Let’s look at some important facts on phantom limb pain:

  • Sensations are frequently “triggered by the perception of salient events, thoughts, and feelings.” However, researchers point to the need for more evidence that it may be linked to a psychological disorder.
  • Phantom limb sensations are experienced in 85% to 98% of amputees within the first 3 weeks post amputation.
  • Many amputees can recover from this pain without treatment or pain medication.
  • Research shows that almost 80% of amputees experience this pain while just over 67% experience residual limb pain. Both of these conditions can affect an amputee at the same time.

Symptoms of phantom limb pain 

The length of time you experience pain is likely to differ from others who live with this condition. Occasionally, it may last only a few minutes. For others, it may be a chronic pain for years. It can feel like:

  • aching
  • burning
  • twisting
  • cramping
  • itching
  • pressure

It may also bring back the pain felt at the time of injury. For instance, pain experienced at the time of a car accident may be felt in the amputated limb or even the non-amputated part of the limb.

Click the video below to learn more about the science of phantom limb pain: 

Pain can arise from one’s activities

While the brain is adjusting to the absence of the body part, it finds new nerve pathways to send neural information. This can trigger phantom limb pain from activities that did not involve the original limb. Such activities include:

  • touching another part of the body
  • going to the bathroom
  • experiencing stress and anxiety
  • having poor blood flow and chest pain (angina)
  • experiencing changes in outside barometric temperature
  • feeling fatigued
  • having sexual intercourse
  • becoming exposed to herpes zoster
  • smoking cigarettes
  • experiencing fluctuations in blood pressure
  • having an ill-fitting artificial limb
  • becoming exposed to the cold

Changing activities can help relieve pain symptoms 

You may be able to avoid the pain by identifying the activities that trigger it. These may include:

  • changes in diet
  • irregularities in the gastrointestinal system
  • smoking cigarettes, drug use, or alcohol abuse
  • spikes in blood pressure
  • traveling during storms and between low and high elevations

Not necessarily always a pain

This condition may also leave you experiencing non-painful sensations. This is because the brain needs time to relearn its newly-modified nervous system. You may find the sensation similar to feeling like wearing a piece of jewelry or clothing. Or you may feel like your limb is still attached and able to move as it used to.

Treating phantom limb pain

Fortunately for some people living with this pain, it is a fleeting experience. Symptoms may disappear over time. But others need treatments for phantom limb pain.

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