Tag: Ehlers-Danlos Syndrome
Living with Multiple Diagnoses: The Importance of Believing
When I was thirteen years old, I saw a rheumatologist after months of white-hot pain and severe fatigue. The doctor took my elbow between her hands, bent it into full hyperextension, and said, “You...
I’m Chronically Ill at 18: Here’s What My Life Is Like
I’ve been chronically ill with no official diagnosis since February 6th, 2017. Yes, I remember the date. Because on that day, my life changed forever. This is my story.
Battling never-ending symptoms
It started with...
Pain Profile: Rob Saffer Living with Ehlers-Danlos Syndrome
Rob Saffer runs two nonprofit organizations and lives in Woodstock, New York.
Pain Resource: What do you do for a living?
Rob Saffer: I work from home as the executive director of a nonprofit, the Creative...
