Tag: Ehlers-Danlos Syndrome

When I was thirteen years old, I saw a rheumatologist after months of white-hot pain and severe fatigue. The doctor took my elbow between her hands, bent it into full hyperextension, and said, “You...

I’ve been chronically ill with no official diagnosis since February 6th, 2017. Yes, I remember the date. Because on that day, my life changed forever. This is my story.  Battling never-ending symptoms It started with...

Rob Saffer runs two nonprofit organizations and lives in Woodstock, New York.Pain Resource: What do you do for a living? Rob Saffer: I work from home as the executive director of a nonprofit, the Creative...