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    Living with Multiple Diagnoses: The Importance of Believing

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    When I was thirteen years old, I saw a rheumatologist after months of white-hot pain and severe fatigue. The doctor took my elbow between her hands, bent it into full hyperextension, and said, “You...
    Chronically ill

    I’m Chronically Ill at 18: Here’s What My Life Is Like

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    I’ve been chronically ill with no official diagnosis since February 6th, 2017. Yes, I remember the date. Because on that day, my life changed forever. This is my story.  Battling never-ending symptoms It started with...
    Living with Ehlers-Danlos Syndrome

    Pain Profile: Rob Saffer Living with Ehlers-Danlos Syndrome

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    Rob Saffer runs two nonprofit organizations and lives in Woodstock, New York. Pain Resource: What do you do for a living? Rob Saffer: I work from home as the executive director of a nonprofit, the Creative...