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Living with Multiple Diagnoses: The Importance of Believing

When I was thirteen years old, I saw a rheumatologist after months of white-hot pain and severe fatigue. The doctor took my elbow between her hands, bent it into full hyperextension, and said, “You...
Chronically ill

I’m Chronically Ill at 18: Here’s What My Life Is Like

I’ve been chronically ill with no official diagnosis since February 6th, 2017. Yes, I remember the date. Because on that day, my life changed forever. This is my story.  Battling never-ending symptoms It started with...
Living with Ehlers-Danlos Syndrome

Pain Profile: Rob Saffer Living with Ehlers-Danlos Syndrome

Rob Saffer runs two nonprofit organizations and lives in Woodstock, New York.Pain Resource: What do you do for a living? Rob Saffer: I work from home as the executive director of a nonprofit, the Creative...