Tag: Ehlers-Danlos Syndrome

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I was 18 and Chronically Ill: Here’s What My Life Was Like

I’ve been chronically ill with no official diagnosis since February 6th, 2017. Yes, I remember the date. Because on that day, my life changed...

Pain Profile: Rob Saffer Living with Ehlers-Danlos Syndrome

Rob Saffer runs two nonprofit organizations and lives in Woodstock, New York. Pain Resource: What do you do for a living? Rob Saffer: I work from...

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